Sailing with a stroke survivor

kalessin

Well-Known Member
Joined
8 Mar 2005
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111
Location
Suffolk, UK
kalessin-of-orwell.blogspot.com
In May I posted an appeal (http://www.ybw.com/forums/showthread.php?359860-Disabled-access-for-Samwise) for help or advice about sailing with my husband Sam (Samwise on this forum) who suffered a massive stroke in May 2012.

We have just returned from a month of very gentle sailing in Baltic Germany and Denmark, and I thought it might be useful to describe our experience in case there is anyone else out there who plans to give it a try.

I would especially like to thank Houleaux (http://www.ybw.com/forums/member.php?38533-Houleaux) who not only lent us his Westerly Storm for a night, but also came up with a practical and successful method for getting Sam over the bow in a Baltic box mooring.

Sam is hemiplegic, i.e. has weakness on the right side. He can use his right leg to stand and walk slowly but his right arm has almost no movement. Our boat is a Westerly Storm 33 which has the advantage of quite low freeboard and wide side decks. The main halyard and spinnaker halyard are both led back to a secondary winch on the starboard side.

We bought a climbing harness for Sam to use when getting on and off, as he found a bosun's chair restrictive. It is a Petzl Adjama - adjustable legs and waist seemed like a good idea as it allows other crew members to use the harness, e.g. for mast climbing (and it was on special offer!). When getting over the bow Sam also wore a lifejacket. We already had a climbing ascender, which was very useful as a handle on the rope above Sam's head. We fitted snap shackles to the stern end of the guardrails so they could be released easily, and removed the dodgers as there was no practical way to rig them.

It took a minimum of two fairly fit and flexible people to get Sam on and off - one to winch, and one to manoeuvre. Getting him off over the bow was most difficult and we benefited from the help of many passers-by who volunteered to help.

To get Sam on to the boat from an alongside quay he donned the harness and we tied the main halyard to it with a bowline. (In fact we bought a short extra length of rope as the halyard isn't quite long enough. The topping lift is a bit tired but otherwise we could have used that instead). Then crew member A on the quay helped him to stand from his wheelchair while crew member B used the secondary/halyard winch to lift him enough to get into the cockpit (quite hard work, as Sam is over 6ft and no lightweight). Person A then hopped aboard and helped him to sit down. That was relatively easy and the process to get him off was identical.

Getting Sam off over the bow was more tricky. We used the main halyard to get him to the mast, then removed the halyard and attached the spinnaker halyard. We tied a loop in the halyard about a metre above his head and attached a secondary line to it. The line was taken off the bow of the boat, ideally to a cleat on the far side of the jetty if one was available, and made off temporarily. Then Sam was winched high enough to get him over the guardrails, left hanging for a moment while person A hopped over the bow, and then hauled away from the boat with the secondary line, while person B lowered him gently and person A positioned him over the wheelchair. This was the tough bit, as the angles were often all wrong and person A really needed to be in two places at once, so person B often had to cleat off the spinnaker halyard and dash forward to help. On every single occasion we did this, even in an apparently deserted marina, someone appeared and offered to help. Of course on a busy quay we were a cabaret act with an audience of hundreds :) Getting Sam on to the boat over the bow was usually easier than getting off, as the mechanics of the arrangement naturally swung him towards the mast.

In the UK or much of Europe it would probably have been possible to find a reasonable finger pontoon or hammerhead to make life easier. In the Baltic where we were, almost all moorings are boxes using stern posts, and on the few occasions when we could have found an alongside mooring in a marina it was at the inner end of the jetty, and we would have sacrificed privacy and peace and/or cool air, which was very necessary in the hot weather.

We considered getting Sam off over the stern but the angles were slightly worse, and on our boat there's a lot of stuff in the way. On a modern yacht with open stern he could probably have walked down a passarelle with some support.

Sam got around the boat very well. He needed help getting up and down the (steep) companionway steps, but in the saloon and in the cockpit he could always find something to hold on to to get himself up, or move himself around. We were fortunate that where we sailed was very sheltered and we had good weather, so he never had to cope with serious waves or heeling to more than 15 degrees or so. We plan to get the boat back to the UK so will face different challenges here!

I hope all this may be useful to someone. If you'd like more information, please don't hesitate to PM me.
 
An interesting post. Not being familiar with the Baltic I am having trouble picturing the over the bow boarding. A feat I would find a challenge.
I am glad to hear you were able to find a way for Sam to continue sailing. I hope he enjoyed it.
Some years ago I took my dad sailing up through desolation sound. It was about two years after he had a similar stroke. Complete paralysis of the right side. This gradually recovered to weakness and slow movement. He may have been a bit fitter he was able to return to work in a limited capacity.
We used pontoon berths and a small 9ft RIB. My dad was able to board from pontoons without too much difficulty. The RIB was a bit more of a challenge; fortunately it was comparatively stable so he was able to accomplish this. The boat was a mid 80’s Catalina 34 with furling headsail he was able to operate the furler and the winches. He did quite a bit of steering. Participation as one of the crew was an important part of the enjoyment of our trip. The main limitation was he would get very tired and often resorted to an afternoon nap.
We were able to get him ashore for a walk in a couple of remote spots. Though we made a point of finding pontoons for easier access.
He enjoyed it.
Unfortunately he passed away not long after so we were never able to repeat.
One thing I have never noticed is a disabled access berth.
 
Thanks for a lovely & refreshing post of someone refusing to let a problem get them down.

I have just been reading the thread of people whingeing about frapping halliards & noisy wind generators etc & was just about to pack in reading on, so your reaction to genuine adversity was a delight to read. Well done, & I hope Sam is able to keep fighting & maybe recover some more mobility in time.

So many of us whinge about really petty stuff when there are heroes who are really working hard to enjoy their lives.
 
This is a wondeful account of someone who is refusing to be beaten. I can't make any practical suggestions, but I find this inspirational.

We should all remember that strokes aren't confined to the elderly. A former colleague had a stroke at about 40; mercifully he eventually made a good recovery. But it took years before he regained full mobility, along with a good measure of cussedness! He married a year or two later (we reckon he couldn't run fast enough any more :)) and went on to raise a family.
 
We did some experimenting with recovery of MOB a while back. This is very much similar to your problem if MOB has a harness on. As you found the spin halyard is good for hoisting the person. What worked very weel is to use the spin pole set on the front of the mast. You run an additional line from the end of the pole to the spin halyard the other end going back to the mast to some sort of tie off point. You can use this line to move the spin halyard and hence the load out toward the end of the pole or allow it to come in closer to the mast. I would imagine with a pole long enough you could lift person off the jetty at the bow then swing him sideways to avoid forestay then allow him to come in closer to the mast to be gently lowered to the foredeck.
Incidentally as a matter of interest one of our bigger clubs (Royal Perth YC) have purpose built hoists for handicapped people but that is in support of their "saiilability" program. A fleet of purpose built open keel boats used for handicapped people racing. olewill
 
This is a wondeful account of someone who is refusing to be beaten. I can't make any practical suggestions, but I find this inspirational.

We should all remember that strokes aren't confined to the elderly. A former colleague had a stroke at about 40; mercifully he eventually made a good recovery. But it took years before he regained full mobility, along with a good measure of cussedness! He married a year or two later (we reckon he couldn't run fast enough any more :)) and went on to raise a family.

Indeed. When I was a paramedic I remember transporting a 28 year old woman who had suffered a stroke. She had a great career, was engaged to be married, nice home, etc.

After the stroke her fiancee left her,she lost her job, many of the hospital staff treated her like she had no hope and she was often spoken to like a stupid child. I had a lot of (professional) contact with her over the space of a year or so and her recovery was incredible. I am 110% sure it was her determination not to give up on herself that made it work.

Anyway my ramblings should end and just offer Sam the advice to stay strong and not give up however hopeless it may seem and carry on enjoying what you love.

W.
 
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